Carisbrooke Surgery

01424 423190

Dementia support and information

If you or someone close to you has been diagnosed with dementia, it can be a very daunting time. You will have lots of questions… What is dementia? Is there any treatment? How will it progress? What support is available? How can I access benefits? Are there any local support groups?

We have put together a list of useful resources to help answer all your questions and alleviate some of the anxiety. You are not alone and there is a wealth of local support available to you. We hope you find this helpful.

Alzheimer’s Society

Lots of information, help and support, FAQs, explaining the diagnosis, “Singing for the brain” music therapy, and dementia advisors
– Email: [email protected]
www.alzheimers.org.uk
– Helpline: Phone: 0300 2221122

Dementia UK

Condition leaflet – explaining the different types of dementia – http://patient.info/health/memory-loss-and-dementia

Advanced care planning

Planning for the future is important, whether you have serious health problems or not, as there may come a time when you are unable to make decisions and say how you would like to be looked after. With your GP at the surgery, a care plan can be created detailing how you wish to be cared for in the future. It is advisable that every patient with dementia does this when they are first diagnosed.

You can make an appointment with a GP you know well, or Dr Archer, the dementia lead will happily go through this with you. Please make an  appointment, telling the reception staff it is for a “Dementia Care Plan”. This will need to be a 20 minute appointment.

You can access the Preferred Priorities for Care (PPC) document which is designed to help you prepare for the future. It gives you an opportunity to think about, talk about and write down your preferences and priorities for care at the end of life.

www.nhsiq.nhs.uk/resource-search/publications/eolc-ppc.aspx

Supper Club

The Supper Clubs are held in eateries countywide – current areas include:

Eastbourne, Hailsham, Seaford, Lewes, Crowborough, Robertsbridge, Hastings & Bexhill.

Dementia Supper Clubs offer informal social groups for Carers and the cared for person as part of the Carers Breaks Dementia Engagement Service meeting monthly at various locations around the county.

Call for details – Phone: 01323 449294
www.eastsussex1space.co.uk/Services/2125/Dementia-Supper-Club

Dementia support at the bridge

Mondays drop in social get-together, table activities and games available. Fridays 3pm – 4pm – Silver Lining Singing Group.
– Phone: 01424 433 611
– Hastings Voluntary Action, The Bridge, 361 Priory Road, Hastings, East Sussex, TN34 3NW
– www.eastsussex1space.co.uk/Services/2405/Dementia-Support-at

Memory or Dementia Support (MoDS)

MoDS is a volunteer led project supported by Building Stronger Bridges. MoDS is a Good Neighbour Scheme and Support Group for people with
Dementia or memory problems, and the people that care for or support them. The aim of the group is to support people to remain part of their community by providing befriending, signposting, guest speakers and community information
– Tesco Extra Community Room, Churchwood Drive, Hastings, East Sussex, TN38 9RB
– Email: [email protected]

https://community21.org/partners/goodneighboursschemes/directory/good_neighbours_scheme/8947

Library service

Books on prescription, home service, reminiscence resources
– Phone: 0345 6080196
– Email: [email protected]
– www.eastsussex.gov.uk/libraries/books-films-music/self-help-books-adults/

Hastings and St Leonards Dementia Action Alliance

A group of local people and organisations who have come together with the aim of working towards Hastings and St Leonards becoming
dementia friendly. Have a look at their website for more information: www.dementiaaction.org.uk

Association of carers

Respite and Befriending – gives carers a break from their caring role offering them an opportunity to have some time to themselves. A volunteer is provided to befriend the cared for person and stay with them so their carer can take a break. The volunteer is unable to
offer personal care or medication. Continence needs to be managed.
– Phone: 0300 330 9498
– Email: [email protected]
– http://associationofcarers.org.uk/what-we-do/respite-and-befriending

Telecare

Telecare offers a comprehensive way of managing the risks to a person’s independence, health and home environment, 24 hours a day, 7 days a week. The Telecare solutions that are available can be tailored according to an individual’s needs; by placing a variety of discreet wireless sensors around the home, which will automatically raise an alert if they detect a possible problem. Coverage: Countywide. Client’s personal budget will be charged for cost of equipment, sensors and monitoring. The maximum contribution from the client is £2.85 per week, subject to a financial assessment
– Phone: 01323 644 422
– Email: [email protected]
– http://www.welbeing.org.uk/

STEPS

To stay independent is a free and confidential housing support service. They can visit you at home, and help you work out what support you personally need to keep living independently, regardless of what kind of accommodation you live in.
– Phone: 0300 123 2422
– Email: [email protected]
– http://www.eastbournehomes.org.uk/about-us/news/2011-news/december-2011/steps/

HARC

Can provide assistance with the following: obtaining the correct benefit entitlement for
local people; increasing income for those in need; contributing to local regeneration; providing
education and training for work; assisting elderly and disabled people to live independently;
providing opportunities for volunteering; employing local people. HARC also provides home visits
for elderly and disabled people and advice surgeries in various locations. HARC has two charity
shops in Hastings & St Leonards.
– Phone: 0333 3440681
– Email: [email protected]
– www.harcuk.com/index.html

Emergency adult social care

Outside of normal office hours our Emergency Duty Service will respond to serious Adult Social Care issues that cannot wait until the next working day. The contact details for this service are: Monday to Thursday: 5pm to 8.30am Weekends: Friday 4.30pm to Monday 8.30am Public holidays:
– 24 hours Phone: 01323 636399
– Phone: 0345 60 80 191
– www.eastsussex.gov.uk/socialcare/

Care respite emergency support services

You can register a plan with the Care Respite Emergency Support Services (CRESS) to make sure that short-term emergency support is in place.
You will be given an East Sussex Carers Card so that in an emergency you or someone else can call the number on the card. We will then contact the emergency contacts listed in your plan. If none of the people listed in your plan are available we will provide support for the person you look after.
– Phone: 0123 738390
– Email: [email protected]
www.eastsussex.gov.uk/socialcare/carers/respite/emergency/

Updated February 2017